And what assurance is there that anything concrete will happen during the next thirty years? Another generation of us – including me – will have died before then. Most of them never had their illness validated nor were they treated with respect and compassion in their lifetimes. Whatever happens next is certainly too late for the millions of patients who have already died during the last eighty years. I remain independent of any organisation or group in order to avoid any conflicts of interest.In 2018, I accepted two tickets for a conference as a thank you for some work I did but decided that I would not accept anything thereafter. My work generates no income or financial contributions.I cover all costs incurred out of my own pocket.
#ELLIOTT SMITH EITHER OR DOWNLOAD BLOG PRO#
#ELLIOTT SMITH EITHER OR DOWNLOAD BLOG PROFESSIONAL#
In recent years, I have focused on the urgent need by the UK’s ME community for the development of a professional media and communications strategy, with the ultimate aim of securing a public inquiry into the shocking treatment and neglect of ME patients, for example – see this post from March 2022 A manifesto for change: from strategy to inquiry.
I have covered many different aspects of “ law and health: due process and civil society” – the above sub-title of the blog – but with a particular emphasis on ME-related matters. Over the next ten years, I documented much of my research and advocacy work here.
In 2012, I set up this blog in order to publish my work on the so-called “ Secret Files on ME“. įrom 2008, with the benefit of social media and other online resources, I increased the range and scope of my research. I first became ill with ME in 1981 (though not diagnosed until 1989) and I began to learn about its history and pathology from then onwards.